This episode of Not Just Patients is all about the need for viewing patient engagement as a professional practice integral to healthcare, rather than just passion work.Our expert guest today is Emma Sutcliffe, Chief Patient Officer at the International Society for Patient Engagement Professionals (ISPEP). Emma is one of the most cited and published experts in the field of patient engagement and patient sciences, with her most recent industry role as the Global Patient Officer at Ipsen. In 2024, Emma founded ISPEP -- the International Society for Patient Engagement Professionals -- which became the biggest organisation to align and elevate patient engagement practices in the sector. Her scientific pedigree is as a Medical Biochemist and she recently added to her clinical skill set by qualifying as a psychotherapist and counsellor. Emma also holds several board trustee positions with rare disease patient organisations. Join us as we explore what it means to be a patient engagement professional (PEP), the movement towards professionalising patient engagement, career development for PEPs, and the power of professional communities. Chapters00:00:00 - Introductions00:01:25 - Emma's journey into patient engagement00:05:22 - Defining patient engagement00:08:40 - Role of a Chief Patient Officer00:12:45 - Careers in patient engagement00:16:25 - The movement towards professionalising patient engagement00:23:17 - The debate about lived experience00:31:44 - Qualities of a patient engagement professional (PEP)00:37:45 - Challenges PEPs face00:41:55 - Training and career development 00:45:20 - Advice for patient advocates 00:49:50 - Reflections with Caitlin and ClarindaResources and abbreviationsISPEP – International Society for Patient Engagement ProfessionalsELT – Executive leadership teamCPO – Chief Patient OfficerSOP – standard operating procedureFMV – fair market valueKCL – King's College LondonPFMD – Patient Focused Medicines DevelopmentEUPATI - European Patients' Academy on Therapeutic Innovation PEP - patient engagement professionalPEP Talks series by ISPEPHave feedback or suggestions for us? We'd love to hear from you!Website: notjustpatients.comLinkedIn: Not Just PatientsEmail: [email protected]

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