Patient advocate and engagement consultant Trishna Bharadia joins Caitlin and Clarinda to explore how advocacy can be supercharged by tapping into diverse channels, from niche community networks to public mass-media platforms that reach millions. Trishna works with multiple stakeholders to embed the patient voice into medicines development and healthcare. She's a visiting lecturer on patient engagement at the Centre for Pharmaceutical Medicine Research at King's College London and Co-Chair of the Working with Patients and Communities Forum at the Faculty of Pharmaceutical Medicine (FPM).Trishna is also a patron and ambassador for several health and disability-related organisations, including the International Society of Medical Publications Professionals (ISMPP) and the Patient Information Forum. Her many awards include a Points of Light from the UK Prime Minister office for her work with patient communities and a Pharma Voice 100 honour for outstanding contributions to the life sciences. On this episode, Trishna shares fascinating stories of her multifaceted advocacy, from Strictly Come Dancing/Dancing with the Stars to radio, journals, social media, and getting her parents involved. She also offers excellent advice for getting started in advocacy, navigating criticism, and owning your story.Chapters00:00:00 - Introductions00:01:46 - Trishna's journey into advocacy00:08:02 - Importance of raising awareness00:13:43 - Exploring different advocacy channels00:21:05 - Strictly Come Dancing experience00:30:05 - Normalising disability/chronic illness in mass media00:33:36 - Caregiver/family involvement in advocacy00:38:59 - Countering cultural and societal stigma00:43:42 - Advice for other patient advocates00:51:10 - Reflections with Caitlin and ClarindaResources and AbbreviationsMS - multiple sclerosisMS SocietyAsian MSMS Society Stop MS AppealISPEP -International Society for Patient Engagement ProfessionalsPatient Information Forum (PIF)NMO - neuromyelitis optica spectrum disorderHave feedback or suggestions for us? We'd love to hear from you!Website: notjustpatients.comLinkedIn: Not Just PatientsEmail: [email protected]

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