MyFSHD

Por: Peter L Jones, PhD
MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
106 episodios disponibles

Latest episodes of the podcast MyFSHD

All-in-one version of our evaluation of EPI-321 data and trial 14/09/2025
Our evaluation and opinions of the EPI-321 clinical trial design and potential based on the pre-clinical data 06/09/2025
Our scientific evaluation of and opinions on the EPI-321 publicly available preclinical data 06/09/2025
Prequel for the Epicrispr Bio data and clinical trial discussion 06/09/2025
The nuts and bolts of gene therapy for FSHD (Part 2 of 2) 17/08/2025
The nuts and bolts of gene therapy for FSHD (Part 1 of 2) 15/08/2025
Part 2 of our discussion with our teen FSHD advocates 30/07/2025
Teens promoting their "Cure FSHD for All" initiative, podcast part 1 28/07/2025
MyFSHD is worldwide on FSHD Day 24/06/2025
Our take on Avidity's FORTITUDE phase 1/2 trial data 11/06/2025
Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 2) 25/04/2025
Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 1) 18/04/2025
FaceToned® Exercises for the Face with Carme Farré 12/04/2025
Brad, our angry Dad with your questions (pt 2) 03/04/2025
Brad, our angry Dad is back with your questions (Pt 1) 25/03/2025
The science and the foundational funding leading to the current technologies in FSHD clinical trials. 15/03/2025
Friends and funding. 23/02/2025
For FSHD gene therapy you need to "Have-a-Little-Heart" 11/10/2024
Fulcrum follow-up with our Angry Dad 28/09/2024
Our take on the REACH losmapimod clinical trial results 19/09/2024
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