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MyFSHD is worldwide on FSHD Day

MyFSHD
24/06/2025 1h 19min Temporada 4 Episodio 9

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Episode Synopsis

"You're gonna need a bigger boat." MyFSHD is our summer blockbuster passion project. We discuss how to get it done, whatever your "it" is, in the FSHD space, as well as our trip to Shanghai and Hanoi to continue our efforts to help FSHDers around the world.

More episodes of the podcast MyFSHD

All-in-one version of our evaluation of EPI-321 data and trial 14/09/2025
Our evaluation and opinions of the EPI-321 clinical trial design and potential based on the pre-clinical data 06/09/2025
Our scientific evaluation of and opinions on the EPI-321 publicly available preclinical data 06/09/2025
Prequel for the Epicrispr Bio data and clinical trial discussion 06/09/2025
The nuts and bolts of gene therapy for FSHD (Part 2 of 2) 17/08/2025
The nuts and bolts of gene therapy for FSHD (Part 1 of 2) 15/08/2025
Part 2 of our discussion with our teen FSHD advocates 30/07/2025
Teens promoting their "Cure FSHD for All" initiative, podcast part 1 28/07/2025
Our take on Avidity's FORTITUDE phase 1/2 trial data 11/06/2025
Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 2) 25/04/2025
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