FSHD Straight Talk with Tim Hollenback

FSHD Straight Talk with Tim Hollenback

Por: FSHD Straight Talk
No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone. 




177 episodios disponibles

Latest episodes of the podcast FSHD Straight Talk with Tim Hollenback

Mostrando página 2 de 9

143: Pushing Through, Gaining Ground: Athletics & Life with FSHD 25/03/2025
142: Caregiving & Advocacy: Stories of the Then & the Now 11/03/2025
141: Finding Synergy, Innovation & Commitment in Our Care Networks with Gregg Lichtenstein, FSHD Straight Talk 25/02/2025
140: A Passion for Education & Independence with Nia Stivers, FSHD Straight Talk 11/02/2025
139: “We don’t grow in the good times. We grow during challenges.” FSHD Straight Talk with Dr. Jennifer Egert 28/01/2025
138: Progress & Hope in FSHD Research with Dr. Lucienne Ronco, FSHD Straight Talk 14/01/2025
137: BetterLife FSHD Can Help You Back, FSHD Straight Talk with Amy Bekier and Kayliegh Worek 10/12/2024
136: Notes of Gratitude with Gracie Caggiano and Ben Livingston 28/11/2024
135: FSHD Cannot Stop an Adventurous Spirit with Don Burke, FSHD Straight Talk 12/11/2024
134: Minutes Matter: Early Onset Advocacy with Ally, Debbie & Kristin 22/10/2024
133: Life Re-Written: Jumping in After Diagnosis with Michael King 08/10/2024
132: 2024 Walk & Roll Celebration! 21/09/2024
131: Find Your Person and Your Passion: FSHD Straight Talk with Brittany Lauro 10/09/2024
130: Home Safety & Respiratory Wellness with Dan Wilson 27/08/2024
129: I Never Thought to Say No with Mary Beth McCabe 13/08/2024
128: Find Catharsis Through Writing and Art: FSHD Straight Talk with Rob Stemple 23/07/2024
127: Movement is Medicine: The Story Behind FSHD Cycling 09/07/2024
126: FSHD Straight Talk: Behind the Mic with Chris Carrino 25/06/2024
125: World FSHD Day Special 20/06/2024
124: Using Storytelling and Activism to Build Awareness of FSHD in China with Wang Wen 11/06/2024
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