Send us a textAspartylglucosaminuria (AGU), is a rare and fatal disease that currently has no treatment. Julian shares the experience of Julia Taravella, and her children Daniel and Alexander.Julian was an EMT, and has first hand experience with the American medical system. To support this podcast please consider donating to the cause:https://www.raretrait.com/home_1https://www.amazon.com.br/Nazira-Purrpose-like-other-English-ebook/dp/B0DNHX7BJQSupport the showBlog: https://blog.ethers.club/Social: https://x.com/0x_SeroGithub: https://github.com/Seroxdesign

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