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Listen "The Silent Witness: Why Most Seizures Go Unrecorded (Part 1) - Dr. Ewan Nurse"
Episode Synopsis
In this first half of our chat with Dr. Ewan Nurse, we explore why seizure reporting matters so much in epilepsy care. From forgotten focal seizures to the challenges of eyewitness accounts, Ewan explains why accurate seizure diaries are vital yet so difficult to achieve. We discuss research findings showing that most minor seizures go unreported(!), why some go over-reported(!), the role of memory, stigma, and psychology in diary-keeping, and the importance of involving carers in the process.
🌐 More about Ewan👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-silent-witness
🌐 More Epilepsy Sparks Insights 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights
👕 Check out our cool merch 👇🏻
https://epilepsy-sparks.creator-spring.com
🎧 Watch on YouTube to the podcast 👇🏻
https://youtu.be/rP7sTgSSiik
📖 Chapters 00:00
Intro – How reliable are seizure diaries really?
01:09 Meet Dr. Ewan Nurse - Engineer & epilepsy researcher from Melbourne
02:05 Why seizure reporting is fundamental for diagnosis & treatment
03:46 Landmark study: only 1 in 3 seizures recorded during video EEG
04:55 Overreporting - when non-seizure events make it into diaries
07:37 Why subtle seizures are the hardest to track
09:28 Psychology, identity & why some people don’t record their seizures
10:12 The role of witnesses in reporting & why so many seizures are missed
11:26 Cool paper on the topic “The Silent Witness, the unseen gaps in eyewitness recognition of seizures"
13:50 Education, collaboration & improving seizure reporting for better care
14:10 Closing thoughts + what’s coming in Part 2
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
📲 Join us on social media!
- LinkedIn https://www.linkedin.com/company/epilepsy-sparks
- Bluesky https://bsky.app/profile/epilepsysparks.bsky.social
- Instagram https://www.instagram.com/epilepsysparks
- Facebook https://www.facebook.com/epilepsysparks
- TikTok https://www.tiktok.com/@epilepsysparks
🌐 More about Ewan👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-silent-witness
🌐 More Epilepsy Sparks Insights 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights
👕 Check out our cool merch 👇🏻
https://epilepsy-sparks.creator-spring.com
🎧 Watch on YouTube to the podcast 👇🏻
https://youtu.be/rP7sTgSSiik
📖 Chapters 00:00
Intro – How reliable are seizure diaries really?
01:09 Meet Dr. Ewan Nurse - Engineer & epilepsy researcher from Melbourne
02:05 Why seizure reporting is fundamental for diagnosis & treatment
03:46 Landmark study: only 1 in 3 seizures recorded during video EEG
04:55 Overreporting - when non-seizure events make it into diaries
07:37 Why subtle seizures are the hardest to track
09:28 Psychology, identity & why some people don’t record their seizures
10:12 The role of witnesses in reporting & why so many seizures are missed
11:26 Cool paper on the topic “The Silent Witness, the unseen gaps in eyewitness recognition of seizures"
13:50 Education, collaboration & improving seizure reporting for better care
14:10 Closing thoughts + what’s coming in Part 2
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
📲 Join us on social media!
- LinkedIn https://www.linkedin.com/company/epilepsy-sparks
- Bluesky https://bsky.app/profile/epilepsysparks.bsky.social
- Instagram https://www.instagram.com/epilepsysparks
- Facebook https://www.facebook.com/epilepsysparks
- TikTok https://www.tiktok.com/@epilepsysparks
In God we trust