Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

18/09/2025 13 min Episodio 230
Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

Listen "Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl"

Episode Synopsis

In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain!
 
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🎧 Watch the chat on YouTube 👇🏻
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📖 Chapters
00:00 – Intro
00:56 – Meet Dr Phillip Pearl
01:17 – What keeps you going, as a paediatric neurologist
03:19 – Choosing paediatric neurology
05:06 – Falling in love with neurology
06:25 – Future of metabolic epilepsies
07:30 – Gene therapy breakthroughs
09:44 – SUDEP & risk awareness
11:18 – Depression, mortality, & suicide in epilepsy
11:55 – The intersection of music and epilepsy
12:28 – Conclusion & thanks
 
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