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Listen "Episode 015 - Erdheim-Chester Disease – Information, Resources and Hope from the Experts"
Episode Synopsis
Welcome to Episode 015 of the Beyond the Diagnosis Podcast. In this episode Kathy talks with a panel of 4 experts on ECD – 2 physicians and 2 representatives from the ECD Global Alliance to talk about advancements in disease diagnosis, various resources available to ECD patients, families and caregivers, and hope for the future.
Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].
Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!
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Resources mentioned in the podcast:
Erdheim-Chester Disease Global Alliance: https://erdheim-chester.org
ECD Care Centers: https://erdheim-chester.org/care-centers/
Histiocytosis Association Physician’s Directory: https://histio.org/resource-overview/histio-physician-directory/
Music: “Heroes” by Noah Smith
Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].
Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!
Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.
Resources mentioned in the podcast:
Erdheim-Chester Disease Global Alliance: https://erdheim-chester.org
ECD Care Centers: https://erdheim-chester.org/care-centers/
Histiocytosis Association Physician’s Directory: https://histio.org/resource-overview/histio-physician-directory/
Music: “Heroes” by Noah Smith
More episodes of the podcast Beyond the Diagnosis
Episode 077 - MEK Inhibitors in ECD
26/03/2025
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