Listen "22Q Deletion Syndrome: A Multidisciplinary Approach to Individualized Care"
Episode Synopsis
Children with 22q11.2 Deletion/Duplication Syndrome are faced with many doctors’ visits across the health care system. With the burdens this puts not only on the family but also their doctors, Children’s Mercy created the Super Q Express 22Q Clinic multidisciplinary clinic. The clinic provides family access to a team of expert clinicians and provides comprehensive individualized diagnostic and management services in Cardiology, Immunology, ENT/cleft palate, GI, behavior/development, and Endocrinology. A social worker and medical coordinator are also present during the visits to provide additional support. Listen in to hear from Max Feldt, DO on the impact the Super Q Express 22Q Clinic has had on patients with 22q11.2 Deletion Syndrome.
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