In this episode, we dive into the unique story of Aisha, a young Black woman who stepped into the role of caregiver when her mother was diagnosed with frontotemporal dementia. Facing the dual challenges of her youth and a lack of caregiving resources tailored for her cultural background, Aisha's journey is one of remarkable resilience and innovation. Aisha shares her personal struggles and triumphs, detailing how she navigated uncharted territories to create a supportive and essential community and resources for caregivers like her. Among the highlights in this episode: 01:11: Aisha explains her entry into caregiving at age 27 and the adjustments she made, including leaving her job to care for her mother 03:40: Aisha describes her evolving role as a caregiver, from companion to handling more complex tasks as her mother's condition progressed 04:48: Aisha discusses the lack of available caregiving resources for her specific demographic as a young, African American woman 06:05: Aisha details her initiative in creating "Our Turn 2 Care" to support young caregivers of color and those in the LGBTQ community 10:19: Dr. Ferguson, Director of Education Development at GHLF, highlights the significant issue of resource scarcity for specific caregiver groups 10:54: Mike Eidsaune, CEO of Caregiving.com, emphasizes the importance of tailored solutions and representation in caregiving resources 13:16: Aisha stresses the importance of a strong support network for caregivers 14:36: Aisha shares how music and the arts played a crucial role in her caregiving experience 19:52: Aisha advises caregivers on the importance of self-prioritization and reflects on her caregiving experience 22:11: Dr. Ferguson comments on the non-linear nature of the caregiving journey and the importance of self-patience 23:42: Aisha lists various organizations and resources useful for caregivers 28:43: Mike concludes by suggesting ways for caregivers to educate themselves and find local resources Contact Our Host Dr. Laurie Ferguson, Director of Education Development at the Global Healthy Living Foundation: [email protected] A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to [email protected] Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

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