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Listen "Breaking Barriers: Transforming Rare Disease Patient Engagement (Part 2) – Trust, Transparency, and Technology"
Episode Synopsis
In this second part of our conversation with Adrian Kielhorn (Alexion, AstraZeneca Rare Disease) and Charlene Son Rigby (CEO of Global Genes), we continue exploring the challenges and opportunities in rare disease patient engagement. This episode examines the role of pharmaceutical companies and healthcare providers in building trust, the importance of transparency, and the impact of real-world evidence, AI, and emerging technology on patient outcomes. Register for the Center for Innovation & Value Research's 6th Annual Methods Summit, March 19, 2025: On-Site Registration: https://ow.ly/T59550UUorWLive-Stream Registration: https://ow.ly/CAMH50UUorU
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