In this episode we talk about:

Allan’s family and brother with an intellectual disability
How having a special needs sibling was different in the 1950s versus in the 2000s (and today)
How life is being your own sibling’s guardian
Family dynamics between parents and siblings
Difficulties of having a sibling join ill-equipped institutions
Not being afraid to admit negative feelings
Allan’s encouragement to fellow siblings

Links:

Allan’s Book: https://www.amazon.com/Fred-Me-Willowbrook-Survivors-Story/dp/B08ZDL1J8H
The Curious Incident of the Dog in the Night-Time: https://www.amazon.com/Curious-Incident-Dog-Night-Time/dp/1400032717
Cost of Living by Martyna Majok: https://www.pulitzer.org/winners/martyna-majok#:~:text=Directed%20by%20Obie%20Award%20winner,we%20all%20need%20each%20other
The End of Average by Todd Rose: https://www.toddrose.com/endofaverage
Willowbrook State Schook: https://en.wikipedia.org/wiki/Willowbrook_State_School
Allan’s NYU-Tandon faculty page: https://engineering.nyu.edu/faculty/allan-b-goldstein

Direct Service Provider: https://opwdd.ny.gov/providers/direct-support-professionals
Bernard Carabello: https://nysilc.org/inductees/32-2022/234-bernard-carabello

AHRC: https://www.ahrcnyc.org/
Allan on PBS News Hour: https://www.youtube.com/watch?v=5oFxwCgATW0

More Info:

Check out the blog and contact Charlene here: https://thespecialneedssiblingpodcast.com/

Get episode updates directly to your inbox: https://www.thespecialneedssiblingpodcast.com/newsletter

Support the podcast on Ko-fi: https://ko-fi.com/thespecialneedssiblingpodcast

Music by:

AlexGrohl from Pixabay
QubeSounds from Pixabay

Edited by: 

Veronica Duquez

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