Episode 098 | Steve Johnston (A Race Against Blindness) joins the podcast! In this episode, Steve chats with Lance about his non-profit "A Race Against Blindness" which is an organization dedicated to finding a cure for the rare eye disease Retintis Pigmentosa (RP) caused by Bardet-Biedl Syndrome (BBS). Steve's son, Luke, has been diagnosed with BBS and is expected to become legally blind in his teenage years - if a cure is not available.  Lance and Steve also explore the intricacies of advocating for a cure while simultaneously learning to accept blindness, how to be a supportive parent to a child with a disability, the lack of resources for rare disease research, and more! SEE-THROUGH is hosted by Lance Johnson. Based in New York City, Lance is a video editor living with an incurable eye condition called retinitis pigmentosa (or RP for short). In most cases, RP causes legal-blindness by the age of 40. Now 33, Lance uses SEE-THROUGH as a platform to explore his inevitable future of blindness through his transparent conversations with his guests.  ------------------------- SUPPORT SEE-THROUGH: Merch: https://seethroughpod.com/merch ------------------------- STEVE JOHNSTON LINKS: A Race Against Blindness: https://araceagainstblindness.org/ Instagram: https://www.instagram.com/dad.vs.blindness/ ------------------------- SEE-THROUGH LINKS: Subscribe: https://bit.ly/3JRSPEO Instagram: https://instagram.com/seethroughpod TikTok: https://www.tiktok.com/@seethroughpod Twitter: https://twitter.com/seethroughpod Facebook: https://www.facebook.com/seethroughpod Website: https://www.seethroughpod.com/

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