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Listen "S8E16: Advocacy and Cushing’s: a chat with the CSRF"
Episode Synopsis
I'm happy to welcome Leslie Edwin, president of Cushing's Support and Research Foundation (CSRF), to our microphones. The CSRF is a leading Cushing's disease and syndrome patient support organization. We talked about the opportunities and barriers for Cushing's patients and advocates. Geri Brown, a Cushing's patient and member of the CSRF, also joined us to talk about her perceptions as a new group member. Our discussion provided a great deal of patient information on the CSRF programs and plans.
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