Lucas: Epidermolysis Bullosa Simplex

21/05/2025 16 min

Listen "Lucas: Epidermolysis Bullosa Simplex"

Episode Synopsis

Our first episode with Matt Witts interviewing one of our All 4 Inclusion members.Lucas is a keen photographer and has a rare condition called Epidermolysis Bullosa Simplex, also known as E.B Simplex.In this conversation, Lucas shares his personal experiences living with epidermolysis bullosa simplex, a rare genetic skin condition that causes severe blistering. He discusses the daily challenges he faces, including pain management, mobility issues, and the emotional impact of living with a disability. The conversation also covers practical advice for others with similar conditions, emphasizing the importance of understanding and empathy.#Epidermolysis Bullosa#disability awareness#chronic pain#personal experiences#skin conditions#empathy#healthcare#living with disabilities#advice for patients#rare diseases