SynGAP10 weekly 10 minute updates on SYNGAP1

SynGAP10 weekly 10 minute updates on SYNGAP1

Por: Syngap Research Fund, 501(c)(3)
Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
185 episodios disponibles

Latest episodes of the podcast SynGAP10 weekly 10 minute updates on SYNGAP1

Mostrando página 3 de 10

A tale of three grants… Coba Grant, Quadrato Grant & Anderson Paper! #S10e145 11/07/2024
1,454! Including Hope. Keto, Heat, Sleep Study, Colorado, California, CIRM & Longboard! #S10e144 02/07/2024
Why is SYNGAP1 so under diagnosed? A reminder. #SRFConf Reg is open! So Many Leaders! #S10e143 18/06/2024
NHS in Colorado! Real talk about new therapies. Planning for RAA & the Conf! #S10e142 31/05/2024
SRF LT Webinar, MDBR, Therapies, Learning at Conferences. #S10e141 20/05/2024
Who will fight for our kids when we aren’t there? SRF and your crew. #S10e140 02/05/2024
SRF is a “Get-to…” not a “Have-to..”  Do something & Go big.  #S10e139 23/04/2024
Grateful and grieving. SRF is growing with our community, all 1,400 of us! #S10e138 04/04/2024
Stoke Praxis Longboard, CHOP & Adult Studies, Hope4theCure, Sprint4Syngap, & Social Matters #S10e137 26/03/2024
SYNGAP1 Ciitizen Paper is out!  UCB Survey.  UCSF is discovering SYNGAP.  #Sprint4SYNGAP 2024 is on!  Fitter at the WH. #S10e136 16/03/2024
#RareOnTheHill and #SRFboard in DC were epic. It’s going to be a great, year, get some #RareBrewCoffee! #S10e135 04/03/2024
A very important questionnaire. Repurposing update & ethics. Grant shaping in progress! #S10e134 24/02/2024
What is this SYNGAP1 illness / disease / syndrome / NDD / DEE / MRD5 / NSID actually called?  #S10e133 13/02/2024
Congratulations to Encoded, Jaguar, Aparito and what will we count? How will we know these therapies are working? #S10e132 07/02/2024
SYNGAP1 is complex, we need to partner with our clinicians to improve care & get ready for repurposing.  #S10e131 22/01/2024
2024 is off to a GREAT start. Time to get clinical, let’s get all these studies oversubscribed and make sure industry knows we are ready. #S10e130 12/01/2024
Happy New Year! Happy 10th Birthday Tony! Congrats #Longboard. Publication update. Good feedback and frustrating stories. #S10e129 05/01/2024
Over the break: Studies to do, Research & Press to read, Funds to raise, Resources to update, Resolve to Volunteer  #S10e128 22/12/2023
Ciitizen continues to evolve, but essential aspects remain: SYNGAP1 as a lead program & a strong team.  +Support Harper #JuggleIsReal - #S10e127 14/12/2023
A patient dosed, new site, audited financials, conference reviews, EOY giving, two studies to join! - #S10e126 12/12/2023
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