Listen "”Seizures, Communication, Behavior, Sleep, Other” Is that right? - Episode 18 of #Syngap10 - July 9th, 2021"
Episode Synopsis
#SYNGAP10 - Ep. 18 - "Seizures, Communication, Behavior, Sleep, Other" Is that right?
https://Syngap.Fund/CTR - $26k and growing.
Birthday Fundraisers, $25 per $250, we will find and thank you!
https://Syngap.Fund/blog - Make sure to read the latest on variants
Events: Webinar & Meetups
https://syngap.fund/webinar - Next week, Saturday, July 17th @ 9 Pacific.
San Diego Family Meetup - SRF Syngap Meet-Up, July 28th @ 3 pm, Details in SRF NA Group.
Beach Haven, NJ Meetup - August 1st 11-5, details in the SRF NY Group. Caren will come! https://Syngap.Fund/caren t-shirts.
121 Warriors - https://syngap.fund/warrior - Egypt, Texas, Quebec & Argentina. Great work.
We are working on a poster for a meeting, stay tuned, we are learning it’s not easy to explain this life… a couple of stories
Order of Symptoms
8 weeks from Seizure to Dx in Ireland, wow, 3.5. Great work Temple St, Dublin.
Meds overload. Always check levels and loop with doctors…
https://Syngap.Fund/CTR - $26k and growing.
Birthday Fundraisers, $25 per $250, we will find and thank you!
https://Syngap.Fund/blog - Make sure to read the latest on variants
Events: Webinar & Meetups
https://syngap.fund/webinar - Next week, Saturday, July 17th @ 9 Pacific.
San Diego Family Meetup - SRF Syngap Meet-Up, July 28th @ 3 pm, Details in SRF NA Group.
Beach Haven, NJ Meetup - August 1st 11-5, details in the SRF NY Group. Caren will come! https://Syngap.Fund/caren t-shirts.
121 Warriors - https://syngap.fund/warrior - Egypt, Texas, Quebec & Argentina. Great work.
We are working on a poster for a meeting, stay tuned, we are learning it’s not easy to explain this life… a couple of stories
Order of Symptoms
8 weeks from Seizure to Dx in Ireland, wow, 3.5. Great work Temple St, Dublin.
Meds overload. Always check levels and loop with doctors…
More episodes of the podcast SynGAP10 weekly 10 minute updates on SYNGAP1
#SyngapCenus 1,675 Teacher Handout CC/VNS Citizen Paper $CAMP starts GLP Tox CIRM funds S1 #S10e186
03/10/2025
F78.A1,the code for #SYNGAP1, turns 4, make sure we use it. #ICD10 for #RareDisease Update. #S10e185
30/09/2025
DSC - RDCRN - NCATS - NIH Press! #AAV in #Cell. SRF at CB. Scramble for SYNGAP1 next week! #S10e184
26/09/2025
You need a #CRID. SRF $1M to $CAMP noticed in Equity Research! #BeaconOfHope was great. #S10e183
26/09/2025
CURE SYNGAP1 joins biotech investors in CAMP4 Tx’s $100M Raise for ASO Program $CAMP #S10e182
10/09/2025
Why & How Do Patient Advocacy Groups Matter? Party Friday! #SYNGAP1Conf soon! #Elopement #S10e181
08/09/2025
#IEP: Syngapians don’t like the heat 🌡️ #BeaconOfHope #IEC2025 #CitizenHealth #DSC #CFC #S10e180
29/08/2025
ZARZA We are Zarza, the prestigious firm behind major projects in information technology.