Deb Kruk was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in her mid-60s, following the loss of her 40 year old son, Brian, to an aortic dissection. They did not know Brian had VEDS when he died. In this episode, she shares that experience, processing her own diagnosis, things she loved about Brian, and more.



Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. 



If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit 



https://calendly.com/d/z7h-2cc-g33



Links to resources, events, and research opportunities: 



VEDS Collaborative Research Study: Email [email protected] 



Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:



https://marfan.org/calendar



Join a Walk for Victory:



https://marfan.org/walk



Help and Resource Center



https://marfan.org/ask



https://loeysdietz.org/ask



https://thevedsmovement.org/ask



Support



You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone 



Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin Weisman



Disclaimer 



The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer. 



Share

Tweet


Share



Source

Ver todos los episodios