Staying Connected

Staying Connected

Por: Katie Wright
I started Staying Connected as a way to connect with other people diagnosed with or impacted by Vascular Ehlers-Danlos Syndrome, or VEDS. I myself was diagnosed with VEDS in 2017, and meeting others with VEDS has changed how I handle my own diagnosis. In this podcast I connect with other people whose lives have been impacted by VEDS and related vascular and aortic connective tissue conditions, like Marfan and Loeys-Dietz, getting a chance to hear and share their stories!
20 episodios disponibles

Latest episodes of the podcast Staying Connected

Call for interviewees for the next season of Staying Connected! 29/07/2025
Carlos Morales, sharing Kaitlyn’s story 03/01/2025
Carmen David 27/12/2024
Reconnecting with Bella Marin aka in_VEDS_tigator 20/12/2024
Marisa Hart 13/12/2024
Tammy Asplund 06/12/2024
Ryan Rodarmer 29/11/2024
Claudia Arbelaez 22/11/2024
Bridget Porter (Metz) sharing Connor’s story with Loeys-Dietz syndrome 15/11/2024
Debbie Vaughan, sharing Josh Doss’s story with VEDS 06/09/2024
Melanie Case 30/08/2024
Nancy Billon 23/08/2024
Hugh Cox 16/08/2024
Maggie Buckley 09/08/2024
Erin Langley 02/08/2024
Carlos Horn 26/07/2024
Special: Emotional Recovery 21/05/2024
Reconnecting with my brother, Jacob Frederick 04/05/2024
Sheila Felske 27/04/2024
Deb Kruk 20/04/2024
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