Today we’re going to hear from Melanie Case, who was diagnosed with Marfan syndrome in 2002, a couple years after she had a thoracic aortic dissection following the delivery of her second child. This aortic dissection went undiagnosed for about two years, and after it was discovered, it led to her diagnosis with Marfan syndrome. 



Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. You can also find information and resources through the John Ritter Foundation, johnritterfoundation.org



Links to resources, events, and research opportunities: 



VEDS Collaborative Research Study: Email [email protected] 



Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:



https://marfan.org/calendar



Join a Walk for Victory:



https://marfan.org/walk/



Help and Resource Centerhttps://marfan.org/ask



https://loeysdietz.org/ask



https://thevedsmovement.org/ask



Support



Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: https://staying-connected.printify.me/products 



You can make a one-time donation to Translucent One LLC at https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8, or you can also support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone.



Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:



Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin WeismanScottFiona McIver



Disclaimer 



The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer. 







Share

Post


Share



Source

Ver todos los episodios