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SMA News & Perspectives

SMA News & Perspectives

Por: SMA News Today

Daily, digital coverage of the latest SMA news and perspectives.

442 episodios disponibles

Latest episodes of the podcast SMA News & Perspectives

Mostrando página 4 de 23

Spine Surgery Effective in SMA Type 1 Children & Mentally Preparing For Surgery 27/01/2022

Wheelchair Hockey Linked to Physical, Psychological Gains & Preserving Privacy When Living with SMA 24/01/2022

Scholar Rock Shares Design of Phase 3 Trial Testing of Apitegromab & Staying Organized With SMA 20/01/2022

#98: How to Manage Caregivers, a Chat with SMA Contributors DeAnn Runge and Michael Morale 18/01/2022

Spinraza May Restore Development of Motor Neurons & Why Finding Reliable SMA Carers Is Not Easy 17/01/2022

Son With SMA Inspires Character on ‘Ordinary Joe’ TV Show & How SMA Can Shape Creativity 13/01/2022

Evrysdi May Be Available in Early 2022 to Eligible UK Patients &Modifying a Wheelchair for SMA Needs 10/01/2022

Spinraza Improves Hand Dexterity in SMA Type 2 Children & Achieving Ambitions with SMA 06/01/2022

#97: Interview with Ali Ramos, a Social Worker and Disability and LGBTQ+ Activist. 04/01/2022

Spinraza Delays Do Not Directly Affect Children in Italy & Making Goals with SMA 03/01/2022

Saliva Samples May Help Diagnose SMA & Moving Into a New Home with SMA 30/12/2021

Poor Spinraza Adherence Leads to More Illness, Healthcare Costs & December Can Be Bittersweet 27/12/2021

Treatment Delays May Be Less Important Than Family Support & Cherishing Togetherness During Holidays 23/12/2021

Phase 3 Trial of Apitegromab on Track for This Year & Managing Technological Issues With SMA 20/12/2021

Neurofilaments and Nerve-muscle Test Show SMA Severity & SMA Adults Struggle to Access Evrysdi 16/12/2021

#96: Chat with SMA Columnist Halsey Blocher and her Mother & Caregiver, Heather Dye 14/12/2021

Novartis Applauds Move to Reimburse Families for Zolgensma & Making Connections with SMA 13/12/2021

Acute Liver Failure Warning Added to Zolgensma Label & Time Management and SMA 09/12/2021

Oral SMA Therapy Is Ideal and Aids Motor Skills and Breathing & Why No Changes in SMA is Good 06/12/2021

#93: Interview With Garrett Lerner, Co-creator and Executive Producer of NBC Series “Ordinary Joe” 02/11/2021

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