Love life, family planning, and sickle cell.

24/01/2025 38 min Temporada 1 Episodio 2
Love life, family planning, and sickle cell.

Listen "Love life, family planning, and sickle cell."

Episode Synopsis

We asked the sickle cell community to send us their burning questions about their intimate life, family planning and sickle cell. The response was clear - you wanted to hear more about :- Starting a family while taking hydroxycarbomide- Priapism- Fertility and pre pregnancy care and support- Risks, medications, care and support during pregnancy and while breastfeeding- Pregnancy and birth with avascular necrosis of the hip - Pain and stress caused by intimacySo we created this podcast episode to answer your questions, share knowledge about the above, and more, and to let you know that you're not alone - others share your concerns, and there are specialists out there who can help and support you. We also delved into IVF and pre implantation genetic testing for people with sickle cell, and how to get this treatment for free.Use the information in this episode to start conversations with your healthcare team, and get any help and support you need.In this episode, host Kesewaa Browne is joined by Professor Eugene Oteng-Ntim, a Consultant Obstetrician with over 30 years of experience in the field. As an expert in antenatal and postnatal care, Eugene delivers maternity services to women on every level of the health spectrum, and has specialist knowledge in caring for patients who live with sickle cell disorder.He is head of Obstetrics at Guy’s and St Thomas’ Hospitals in London, and Clinical Director for Women’s Health Services. Eugene is also Professor of Obstetrics at King’s College London.Professor Eugene became the first black Professor at Guy’s and St Thomas’ Hospital and the first black Professor of Obstetrics at Kings College, London.Kesewaa Browne is multiplatform Journalist for the BBC, and Assistant Producer and Sport Presenter at Riverside Radio.  Kesewaa has produced a BBC documentary about sickle cell disorder and is passionate about raising the profile of the condition.We hope you enjoy this episode and learn more about some important topics, which are sometimes a challenge to bring up or discuss with others. Make sure you let us have your feedback, so we can create more of the content you want to see.For more information:Watch our animated Priapism video on YouTube : https://bit.ly/3CwC1VnFind additional resources about priapism : www.sicklecellsociety.org/priapism/Learn more about sickle cell screening and testing : www.sicklecellsociety.org/screeningprogramme/@SickleCellUKhttps://www.sicklecellsociety.org/Charity no. 1046631

More episodes of the podcast Sickle Cell Society Podcast