Episode 9 of Real Talk with @butyoudontlooksickofficial, @Sticksy617, and @itsbellawhit
In this week’s episode, Sticksy, Bella, and I, all public advocates and influencers, have a discussion about our experiences working within our communities- and the reality that comes with public advocacy. When discussing chronic illness and mental health regularly in our work, all three of us have shared experience dealing with the turbulence as individuals who speak very candidly on our experiences. From algorithmic censorship to abled-bodied audiences critiquing our advocacy, we’ve dealt with it all, and are here to laugh about it all. Speaking with Sticksy and Bella, it was a refreshing perspective to take a moment to look at the problems within the space. Most conversations surrounding disability and illness, whether it be mental or physical, has been primarily centered on the translation in-between the healthy world and disability. But, the reality is there is a broad spectrum of issues, from micro to macro.
About our guests:
Sticksy is a massively successful influencer, boasting over 750,000 followers on TikTok. Diagnosed with Asperberger’s, BPD, EDS, and symptoms of Marfan’s, Sticks takes a fresh approach to advocacy. Both blunt and hysterical, he has contributed greatly, providing a needed perspective in the constantly developing world of chronic illness. With platforms full of honest content, opinions, commentary, and humor, Sticksy is not afraid to say what needs to be said.
You can find Sticksy on TikTok and Instagram at @Sticksy617
You may recognize Bella Whit from episode 6, “You’re Not Immune to Dying”. Now also our podcast manager, Bella is a social media influencer who focuses on raising awareness on EDS and the process of being undiagnosed and undertreated after taking years to be diagnosed herself. She uses and plays on her own experiences to share her often humorous, messy, life since her onset of symptoms. Bella’s content focuses on connecting the world of the chronic and the healthy, making the processes that come with disability accessible to everyone.
You can follow Bella on Youtube, TikTok and Instagram @itsbellawhit

About the host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick."
After battling a rare neurological disorder for 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. She has successfully created a program centered on assisting both those who are diagnosed and going through the diagnostic process.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com

Edited by: Kristen @birdbearhealth
Final Edit: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
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