Episode 6: Understanding how patient organizations can support families

04/11/2021 35 min Temporada 1 Episodio 6
Episode 6: Understanding how patient organizations can support families

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Episode Synopsis

Living with Hunter syndrome is overwhelming, but there are many sources of support available. This episode features Bob Stevens (UK MPS Society) and Terri Klein (US National MPS Society), who are very familiar with the challenges that families face. They explain the importance of patient organizations and share practical advice from their many years of experience. For more information on these organizations, please visit www.mpssociety.org.uk and www.mpssociety.org. This information is available to the general public for informational purposes only; it should not be used for diagnosing or treating a health condition or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further advice. This information of disease could have age restrictions in some countries. Please follow these restrictions. The information, views and opinions of the presenter do not necessarily reflect the views and opinions of Takeda. Date of recording: September 2021 VV-MEDMAT-54315 Hosted on Acast. See acast.com/privacy for more information.