RARE-X

RARE-X

Por: RARE-X
We are a dedicated team of committed forward thinkers transforming rare disease in support of patients. PATIENTS' DATA POWERING PROGRESS
8 episodios disponibles

Latest episodes of the podcast RARE-X

Changing the Understanding of Rare Diseases with Data 03/04/2024
An Open Science Data Challenge to Address Rare Neurodevelopment Diseases 15/12/2022
The Power of Being Counted 07/06/2022
Ensuring Diversity, Equity, and Inclusion in the World of Rare Disease 31/03/2022
Creating a Faster Path to a Rare Disease Diagnosis 05/01/2022
Reinventing the Consent Process to Make It Patient-Centric 18/10/2021
A Collaboration with a Shared Vision for Transforming the Rare Disease Landscape with Patient Data 17/05/2021
The Challenges of Long-Term Follow-Up Studies for Cell and Gene Therapies 25/03/2021
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