Teri is a hard-working, rare mama fiercely fighting for her son Beau, who has a rare condition called Larsen Syndrome. When Beau was born, all of his major joints were dislocated, and his spine had a curvature. Beau's had eight major surgeries over the last ten years, and Teri and her husband Dan have been advocating for him every step of the way. In this episode, Teri shares how she never stops showing up for Beau, how she's learned to accept a life of uncertainty, and how she loves watching how bright Beau shines!     EPISODE HIGHLIGHTS All About Larsen Syndrome The ways Teri rises to meet the challenges of being a rare mama  Teri's favorite quote that inspires her to keep going Where Teri finds hope Teri's best advice for other rare mamas   LINKS & RESOURCES MENTIONED Teri Furey https://www.instagram.com/terifurey/ Larsen Syndrome https://rarediseases.org/rare-diseases/larsen-syndrome/    CONNECT WITH NIKKI Facebook https://www.facebook.com/RareMamas1/ Instagram https://www.instagram.com/Rare_Mamas/ Website https://raremamas.com/ Email [email protected]

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