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Rare Care Podcast

Rare Care Podcast

Por: Rare Disease Advisor

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

100 episodios disponibles

Latest episodes of the podcast Rare Care Podcast

Mostrando página 4 de 5

An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H 05/11/2024

An Interview With Amy Case, MD, Chief Medical Officer of the Pulmonary Fibrosis Foundation 04/11/2024

An Interview With Steve Van Wormer, Cofounder and Director of the Phaware Global Association 21/10/2024

An Interview With Victor Test, MD, Chair of the Pulmonary Vascular Disease Program at Texas Tech School of Medicine in Lubbock 16/10/2024

An Interview With Drew Harris, MD, Expert on Black Lung Disease 09/10/2024

An Interview With Mahesh Desai, PhD, of the Luxembourg Institute of Health 25/09/2024

An Interview With Karin Hoelzer, DVM, PhD, Senior Director of Policy and Regulatory Affairs at NORD 18/09/2024

An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP) 28/08/2024

An Interview With Taylor Kane, Founder and Executive Director of 'Remember the Girls' 19/08/2024

An Interview With Dr. Jeffrey A. Cohen of the Cleveland Clinic on Cellular Therapies for MS 15/08/2024

An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA 05/08/2024

An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS 01/08/2024

An Interview With Michelle C. Werner, CEO of Alltrna 25/07/2024

An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD 17/07/2024

An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio 11/07/2024

An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy 01/07/2024

An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou 27/06/2024

An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou 27/06/2024

An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida 18/06/2024

An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD) 10/06/2024

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