In this episode of Pete's Pub, host Peter Kemmerer welcomes Jeremy Roma, who shares his family's journey with neurofibromatosis (NF), a rare genetic disorder. Jeremy discusses the challenges and triumphs of raising a child with NF, the importance of early intervention, and the role of community support. He also highlights the advocacy work done through the Children's Tumor Foundation and the Neurofibromatosis Network.Want to help? Check out Jade's Way Warrior's team fundraising page at https://join.ctf.org/team/647961You can sign up if you want to walk or simply make a donation. All proceeds go to the Children's Tumor Foundation.You can also reach the Neurofibromatosis Network webpage here: https://nfnetwork.orgCupid's Undie Run: https://my.cupids.orgTheme music for Pete's Pub is "Hard Fought Victory" by Chris Martyn and Geoff Harvey at www.purple-planet.comPlease consider donating to Al Otro Lado, who provides legal assistance and humanitarian aid to refugees, deportees and other migrants trapped at the US-MX border. Donate at alotrolado.org/letsdosomethingYou can contact Pete at peter dot kemmerer at gmail dot com with comments, questions, or if you'd like to be a guest on an upcoming podcast.

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