On Rare

On Rare

Por: BridgeBio Pharma
Join us each month to listen and learn from the experts – people living with rare conditions. We’ll discuss the challenges and triumphs of life with a rare genetic condition and hear from scientists working to develop new medicines. Honest conversations with the rare community, led by the patient advocacy team at BridgeBio. Subscribe below to catch each episode as it goes live.
45 episodios disponibles

Latest episodes of the podcast On Rare

Another Year of Purpose and Progress: On Rare Looks Back at 2025 09/01/2026
On Rare Innovators: Carmen Alonso y la fundación de ALPE - "El amor que das, lo recibes de vuelta" 08/01/2026
On Rare Innovators: Nasha Fitter is Redefining the Rare Disease Playbook – “Who says we can’t do this?” 10/12/2025
"It’s good to be alive." Greg is living with LMNA cardiomyopathy 06/11/2025
On Rare Innovators: Carmen Alonso and the Founding of ALPE - "The Love You Give, You Receive Back" 10/10/2025
“I’m still very grateful for the life that I’ll have.” Cerys is living with Limb-Girdle Muscular Dystrophy type 2i/R9 04/09/2025
“It’s important to stay connected” Daniel is living with Tuberous Sclerosis Complex (TSC) 26/06/2025
“We just thought we were clumsy”. Katie and Allie are living with late-onset Tay-Sachs disease 25/04/2025
"We say it all the time: We're lucky." Philip is living with hereditary transthyretin amyloidosis (ATTR) 25/03/2025
“There’s always somebody to fight for.” Kady’s son Julien is living with Autosomal Dominant Hypocalcemia Type 1 (ADH1) 18/02/2025
Another year of incredible conversations! On Rare celebrates our 2024 podcast guests! 03/01/2025
“When numbness of the hands is a window to the heart,” Charles is living with Transthyretin amyloidosis cardiomyopathy (ATTR-CM). 09/12/2024
“You can do everything that you want to do.” Erin is living with hypochondroplasia. 29/10/2024
“I have 2I, but I am not 2I.” Misty’s Journey Living With LGMD2I/R9 03/10/2024
“They told me to go home and love my child” Dawn’s daughter Vayle is living with Canavan Disease. 12/08/2024
“I chose to reinvent myself.” Sean is living with hereditary transthyretin amyloidosis (ATTR). 09/07/2024
“If I had known then what I know now, I wouldn’t have been so scared.” Alex is the mother of Hudson, a boy living with hypochondroplasia, a rare form of dwarfism. 10/06/2024
Jonathan Fox, MD, talks about ATTR 25/04/2024
“We Only Live in This Moment.” Part Two of a two-part conversation with Eric, who lives with Transthyretin Amyloidosis (ATTR). 25/04/2024
“Accentuate the Positive.” Eric is living with Transthyretin Amyloidosis (ATTR). 03/04/2024
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