NDF Talks

Por: Neuromuscular Disease Foundation
Welcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS…”

Each episode features a GNE Myopathy community member’s personal experience with GNE Myopathy.
Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNE Myopathy.

About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding
12 episodios disponibles

Latest episodes of the podcast NDF Talks

NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose 20/09/2022
NDF Talks: Planning The Future With Dr. Shahin Ghadir & NDF Emotional Wellness Director Carol Gelbard, LSCW 19/09/2022
NDF Talks: Breaking the Taboo of Disability 26/07/2021
NDF Talks: The Problems With Ableism In Our Culture 27/05/2021
NDF Talks with: Carol Gelbard, LCSW about Promoting and Supporting Wellness in 2021 16/04/2021
NDF Talks with: Mother/Caregiver of GNE Myopathy patients, Antionette 16/04/2021
NDF Talks with: CEO Lale Welsh Discusses the journey to gene therapy for GNE Myopathy with NDF Board Co-Chair Ralph Loren 16/04/2021
NDF Talks with: GNE Myopathy Patient, Sabeen 16/04/2021
NDF Talks with Carol Gelbard, LCSW about stress management 16/04/2021
NDF Talks with: GNE Myopathy Patient, Maya 16/04/2021
NDF Talks with: GNE Myopathy Patient, Amy 16/04/2021
NDF Talks with GNE Myopathy Patient, Tara 16/04/2021
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