MyFSHD

Por: Peter L Jones, PhD
MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
106 episodios disponibles

Latest episodes of the podcast MyFSHD

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Our "State of the Field" address. 27/01/2023
Happy 2023 from MyFSHD! 15/01/2023
Merry Christmas, Happy Hanukkah, and Happy Holidays from MyFSHD 25/12/2022
Antisense, gene therapy, and stem cell news, and the Blues Brothers 15/12/2022
The best humanized FSHD muscle xenograft mouse model with Dr. Bob Bloch. 02/12/2022
We have a lot to be thankful for! 24/11/2022
More on FSHD research testing, CRISPR, and minipigs 20/11/2022
Catch up on some news of the week then sit down with FSHD researcher Maryam Farooqi 10/11/2022
News of the week on Fulcrum and CRISPR gene therapy. 06/11/2022
Happy Nevada Day! Today we talk about early onset FSHD and getting adolescents into clinical trials. 31/10/2022
Monopoly money in science and to test, or not to test, (your kids) for FSHD 21/10/2022
Keeping up with even more investment and more technology coming into the FSHD space. 13/10/2022
More clinical trial discussion with our FSHD Mom and Dad. 05/10/2022
Update on clinical trials for FSHD 01/10/2022
Catching up on FSHD, Saturday Sept 24th, 2022 24/09/2022
Live from Sydney, Australia, it's MyFSHD! 17/09/2022
Brunch with Maryam (and Takako and Peter). Our 50th episode! 11/09/2022
FSHD catch-up, September 7, 2022 08/09/2022
More CRISPR questions from the audience. 01/09/2022
Kari Cilliers, a medical student from South Africa found her way to Nevada to learn about FSHD 27/08/2022
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