My rare disease

Por: Katy Baker
Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people.
From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give others in the rare disease community an opportunity to share their thoughts and experiences.
29 episodios disponibles

Latest episodes of the podcast My rare disease

Koolen-de Vries Syndrome - Becky 25/05/2023
Cystic Fibrosis - Annabelle Whiting 30/07/2022
Thyroid cancer - Carly Flumer 15/02/2022
Ataxia - Tallulah Clarke 13/11/2021
Congenital heart defect - Liam Garay 22/10/2021
Periventricular Nodular Heterotopia (X linked) - Georgie Peterson 11/08/2021
LIVE episode with Katie Callaghan! 29/06/2021
Friedreich's ataxia - Georgia Hart 19/06/2021
Aspergillosis - Marie Unsworth 22/05/2021
Atonic Bowel - Caraldine & Declan Nolan 15/05/2021
Osteogenesis Imperfecta - Charlotte Proud 09/05/2021
Phenylketonuria (PKU) - Sarah Marshall 01/05/2021
LIVE episode with Katy Baker & Katie Callaghan 09/03/2021
Scimitar Syndrome - Katy Baker 28/02/2021
Occipital Horn Syndrome - David Rose 10/02/2021
Mitochondrial myopathy - Adam Johnson (DadVocate) 25/01/2021
AFAP & Hereditary Colon Cancer - Dan Dry Dock Shockley 19/01/2021
Ehlers-Danlos syndrome & Chronic intestinal pseudo-obstruction - Katie Callaghan 20/12/2020
Dyspraxia and Cerebral Palsy - Natalie Williams 19/12/2020
Adrenal insufficiency - Sophie-Louise White 20/11/2020
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