Hi there, I'm Barney Black and I was diagnosed with Relapsing Remitting Multiple Sclerosis in 2017.
Since then I have shared some of my story on Youtube UC-3c5PTy1a5QYwiLEBvNdhQ 
Now it's time for other voices to be heard which is the motivation behind this podcast.
A little bit of science:
The estimates suggest that over 130,000 people in the UK live with MS and that number is rising.
There is no cure but there are over a dozen treatments available on the NHS for replapsing remitting MS. Nothing yet for Progressive MS.
There are many support groups across the UK and at local levels which I have found to be useful.
The people I have found of most value are those with the condition. Because they just get it. They know and understand when you describe the MS Hug is more like being crushed or similar to a heart attack. That fatigue isn't just being tired, it's like running a battery on 15% expecting 100% performance. And that's just before getting out of bed.
They also understand it's such a variable disease and that our common ground is that we have MS. But that we all have our own flavour of MS.
In these 6 episodes you will hear optimism, fear, hope, stoicism and ambitions for the future. What I know you will hear is the authenticity in each person's story.
Thanks for listening,
Barney
 

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