Listen ""I felt like a burns victim" | Life with TSW: Amy Wilson"
Episode Synopsis
In this episode of Life With a Difference, I speak with Amy (@Journey_of_Amy), who lives with severe eczema and is currently going through Topical Steroid Withdrawal (TSW).Amy shares openly about the physical pain, the mental health struggles, and the stigma of living with a visible difference. From being compared to a burns victim at her worst flare, to teaching children that “different is normal,” Amy’s honesty shines a light on what it’s really like to live with eczema on the extreme side of the spectrum.We discuss: • What TSW (Topical Steroid Withdrawal) actually is • The devastating physical symptoms: swelling, redness, bone-deep itch, flaking & peeling • The mental toll of eczema and suicidal thoughts that many never talk about • Her journey through treatments: methotrexate, dupilumab, Rinvoq, cyclosporine & more • Why self-advocacy at dermatology appointments is essential • How children and students respond to visible difference in the classroom • The role of community and connection in coping with chronic illness • Hope for the future with new treatments like lebrikizumab and nemolizumabAmy also talks about her work as a teacher, her growing advocacy on Instagram, and why she feels it’s her mission to raise awareness and help others feel less alone.💬 Have you experienced eczema or TSW? Share your story in the comments — your voice matters.👉 Subscribe to Life With a Difference for more honest conversations with patients, carers, and advocates.#Eczema #TopicalSteroidWithdrawal #VisibleDifference #TSW #LifeWithADifference #SkinConditionsSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference
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