It Happened To Me: A Rare Disease and Medical Challenges Podcast

It Happened To Me: A Rare Disease and Medical Challenges Podcast

Por: Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)
The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face of difficult health obstacles. It happened to me…I’m not alone and neither are you.
We encourage you to learn more at ItHappenedToMePod.com.
Please use the contact form on our website to submit your guest suggestions, comments, questions, ideas, and feedback for the show, you can also email us directly at [email protected].
It Happened To Me is created and hosted by Cathy Gildenhorn and Beth Glassman. Steve Holsonback is our media engineer and co-producer. DNA Today’s Kira Dineen is our ...
73 episodios disponibles

Latest episodes of the podcast It Happened To Me: A Rare Disease and Medical Challenges Podcast

#72 Wolfram Syndrome Expertise from Dr. Fumihiko Urano [Re-Release] 17/11/2025
#71 When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome 03/11/2025
#70 The First Spinraza Patients: A Rare Mama’s Advocacy for her Son with SMA 20/10/2025
#69 Breath by Breath: Kenny Kasnett’s Journey Through Lung Disease and Transplant 06/10/2025
#68 The Hidden Danger in Newborns: OTC Deficiency Explained by a Geneticist and a Mother 15/09/2025
#67 Exploring Clinical Trials in Latin America with Julio G. Martinez-Clark 01/09/2025
#66 Not Just Fatigue: Global Advocating for ME/CFS from Bed 18/08/2025
#65 Invisible Swells: Surviving with Hereditary Angioedema Type III 04/08/2025
#64 Challenging the Label: Living and Thriving with Trisomy 18 Part 2 21/07/2025
#63 Redefining “Incompatible with Life”: A Mother’s Mission for Trisomy 18 Awareness Part 1 07/07/2025
#62 Vision Through Music: Empowering Visually Impaired Kids with Adaptive Music Education 16/06/2025
#61 How Jack’s Basket Is Changing the Down Syndrome Diagnosis Story 02/06/2025
#60 CRISPR, Community, and Courage: A Deep Dive into Sickle Cell Advocacy 19/05/2025
#59 From Diagnosis to Memoir: Laura Kieger’s Mission to Share Her Family’s FAP Story 05/05/2025
#58 Living Deafblind: Carrie Francis’ Resilience After 5th Degree Facial Cleft 21/04/2025
#57 APOL1-Mediated FSGS: What Families Need to Know, from Diagnosis to Advocacy 07/04/2025
#56 Navigating Dual Diagnoses: Amy Raskin Shares Parenting Strategies for Diabetes and Celiac 17/03/2025
#55 Growing Up with a Childhood Autoimmune Disease with Beth Glassman 03/03/2025
#54 Family Planning Challenges: Cathy Gildenhorn on Miscarriages and The Miracle of Adoption 17/02/2025
#53 From Journalist to Advocate: Laura Bonnell’s Mission to Support Cystic Fibrosis Families 03/02/2025
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