Regan: Goldenhar Syndrome

09/09/2021
Regan: Goldenhar Syndrome

Listen "Regan: Goldenhar Syndrome"

Episode Synopsis

Matthew has three very rare abnormalities. He has been diagnosed with Goldenhar syndrome, agenesis of the corpus callosum, and an extra copy of his 78N22 chromosome. Now at 12 years old, Regan, Matthew's mom, shares her experience with Matthew so far.