Angie Rowe joins the Global Genes team as Chief Operating Officer. She has over 17 years experience in executive management of LLCs and non-profits. She most recently spent the past 8 years managing and directing various aspects of the U.S. Bank OC Marathon and related events. In this role, she also developed and implemented the OC Marathon Foundation’s very successful Kids Run the OC program. Prior to the OC Marathon, Angie was president of the Junior League of Orange County, CA. In addition, she has served on various non-profit boards throughout the county, and in those roles helped several in their start-up phases. Angie is a breast cancer survivor, enhancing her excitement about joining Global Genes because she personally understands the value in an accurate genetic diagnosis. Global Genes®  is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. What began as a grassroots movement in 2009, with just a few rare disease parent advocates and foundations, has since grown to over 500 global organizations. Global Genes' mission is to eliminate the challenges of rare diseases by building awareness, educating the global community, and providing critical connections and resources that equip advocates to become activists for their disease.

Ver todos los episodios