Important Update with HD-PACE

28/08/2025 15 min
Important Update with HD-PACE

Listen "Important Update with HD-PACE"

Episode Synopsis

We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback.  |Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease.  📊 Once we have enough responses, results will be shared publicly at www.hdpace.org.  Your voice matters! Please take the survey and share it with others in the HD community.  #HuntingtonsDisease #HDCommunity #PatientVoice #HDPACE  🔗 Take the survey here.