Robin is an experienced and innovative professional with an extensive understanding of the oncology and genetics spaces. She founded AliveAndKickn with her husband, 3-time cancer survivor, after he was diagnosed with Lynch syndrome.  It’s a common but little known hereditary cancer predisposition and they wanted to do something to change that. She has spent the last ten years as Executive Director and co-founder. She has developed AliveAndKickn to focus on providing resources for Lynch syndrome patients and developing innovative tools like The HEROIC Registry to further research.  She continues to work towards expanding outreach and education about Lynch syndrome in the clinical and patient communities and to the general public.

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