101: World FSHD Day: Raj Badiani, FSHD UK

FSHD Straight Talk with Tim Hollenback
20/06/2023 13 min Episodio 101
101: World FSHD Day: Raj Badiani, FSHD UK

Listen "101: World FSHD Day: Raj Badiani, FSHD UK"

Descargar episodio Ver en sitio original

Episode Synopsis

Next up in our series of #WorldFSHDDay special episodes is Raj Badiani of FSHD UK! Raj discusses the patient experience and FSHD UK’s incredible work towards clinical trial readiness.

More episodes of the podcast FSHD Straight Talk with Tim Hollenback

159: Do Hard Things: Movement is Medicine & Riding to Raise Awareness about Early Onset FSHD with George Pollock & Ally Roets 11/11/2025
158: Always a Work in Progress: Growth through Movement, Connection, and Adapation with Elissa 28/10/2025
157: Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion 14/10/2025
156: Lived Experience Matters: The Impact of Storytelling in Rare Disease Communities & Advocacy with Michael King 23/09/2025
155: 2025 Walk & Roll Special 20/09/2025
154: Don’t Let It Get to You: Living & Growing with FSHD with Kendra Vaalemon 26/08/2025
153: More Laughter, More Love: Reflections on an Inter-Abled Relationship with Leah & Joe Lee 12/08/2025
152: A Career Retrospective: Over a Decade of Care, Advocacy & Writing with June Kinoshita 22/07/2025
151: A Parent’s Perspective: FSHD History, Advancements & What We Can Do Now 08/07/2025
150: The Power of Vulnerability with Aidan Mace, FSHD Straight Talk with Tim Hollenback 24/06/2025
© 2003-2025 ZARZA | AHEAD OF OUR TIME
privacy policy
In God we trust In God we trust
PreSales Questions? Click Here
or call our toll-free line at +1-888-5002068 Miami, Florida, USA