Listen "DC Leukodystrophy Research Trip Update(UBTF)"
Episode Synopsis
During our trip to Washington, DC for medical research related to my son's Leukodystrophy gene mutation (UBTF), we stayed at the Ronald McDonald House for accommodations. In addition to focusing on medical appointments and research, we took the opportunity to visit family members, including his grandparents (nono and yaya) and aunt. We also enjoyed attending a lively Greek festival together, immersing ourselves in the cultural experience. The trip was rounded off with a pleasant brunch shared with our relatives, combining both the pursuit of medical insights and cherished family moments in our nation's capital. Hosted on Acast. See acast.com/privacy for more information.
More episodes of the podcast Double Rare: A Mother's Path With Two Rare Diseases
Its been a year lets update
30/06/2025
We get to go to Disney?? what??
27/08/2024
Sick Policies and what's coming up
03/06/2024
A Little Life Update
26/05/2024
Mental health along with diagnosis
17/05/2024
Genetic Testing
13/05/2024
Unexpected 6 month checkup
13/05/2024
Introduction
12/05/2024
ZARZA We are Zarza, the prestigious firm behind major projects in information technology.