No one likes being in the hospital, but when your child has a diagnosis of CDKL5 Deficiency Disorder, hospitalizations are a part of life. Some of the most challenging hospitalizations are for respiratory illness. Recently, Marissa was in the hospital for two weeks with her son for the flu. In this episode, hear all about their stay as well as about how we prepare for hospital stays, tips and tricks, a candid discussion about the challenges, and how sometimes life looks different upon discharge.SHOW NOTESCheck out our website and sign up for our quarterly newsletter at www.CDKL5inColor.comFollow us @CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, & YouTube!Email us to be on the show! [email protected] IN THE EPISODE:PICUCommon Respiratory IllnessesPediatric Intubation VideoSecretions and Suctioning InformationRESOURCES:A Tiger Mom’s Guide for Sudden HospitalizationHow to Pack a Caregiver Ready Bag

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