Episode Synopsis "Events in the Hemophilia Community"

Guest host Matt sits down with Jill, a caregiver, and Paul and Shelby, who have hemophilia B, to talk about events in the hemophilia community. Recorded on site at The Coalition for Hemophilia B Symposium, the group discusses how their involvement in the community has evolved over the years and what they would recommend for new families who are looking to get involved at local and national events.

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• Women With Hemophilia: A Physician’s Perspective
• Adventure Education and the Hemophilia Community
• Hemophilia in Children and Teens
• Mental Health and Hemophilia
• Hemophilia and Physical Therapy
• The Role of the Social Worker
• Pain, Depression, and Hemophilia
• Events in the Hemophilia Community
• Using Music as a Creative Outlet
• Going Away to College
• Connections Across Generations
• Relationships and Hemophilia B
• Women With Hemophilia
• Hemophilia Hacks: Part 2
• Hemophilia Hacks: Part 1
• The B2B Advisory Board
• Managing Emotions
• Dating and Marriage With Hemophilia B
• Making the Most out of HTC Visits
• ER Visits and Hemophilia
• Hemophilia Caregiver 101
• Self-infusion and Camp
• Hemophilia Education for People Outside the Family
• Hemophilia in Sibling Relationships
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