Welcome to Episode 037 of the Beyond the Diagnosis Podcast. In this episode we highlight an incredible study on caregivers, a very important piece in the puzzle of histiocytosis.  Join Kathy as she speaks with Drs. Allison Applebaum and Eli Diamond about their recently completed caregiver study, the benefits and meaning that come from caregiving and the needs that exist in this very important role.

Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].  Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback! Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.

The Histiocytosis Association has several support groups, including for patients, caregivers, a focus on managing grief, and breakout rooms by histiocytic disorder on the open calls! Join the group(s) that feel most beneficial for you. Learn more and sign up, here:


http://histio.org/peer-chats
 

Resources mentioned in the podcast:

To view the full text of the study: https://clinicaltrials.gov/ct2/show/NCT03990428
Registry for patients with Erdheim-Chester Disease and other histiocytoses: https://clinicaltrials.gov/ct2/show/NCT03329274

 
Follow the Histiocytosis Association on social media:

Facebook: https://www.facebook.com/histio
Twitter: @histiocytosis
Instagram: histiocytosis_association
YouTube: https://www.youtube.com/histiocytosisassoc

Music: “Heroes” by Noah Smith

Ver todos los episodios