Being Rare Podcast

Por: Sarita Edwards
Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration.

Follow us on social media @beingrarepodcast. Got questions about the show? Email us - [email protected]!
111 episodios disponibles

Latest episodes of the podcast Being Rare Podcast

Mostrando página 4 de 6

Ep 50. One Minute Mondays: Perception - Perceiving That Your Kid Is A Burden [to Others] 23/05/2022
Ep 49. Moms & Mental Health: The Importance of Self Care 22/05/2022
Ep 48. One Minute Mondays: Shared Spaces - There's Enough Room For Us All 16/05/2022
Ep 47. One Minute Monday: Trust - Learning How to Trust Those Responsible For Your Nonverbal Child 09/05/2022
Ep 46. A Special Mother's Day Edition of the Being Rare Podcast 08/05/2022
Ep 45. New Beginnings - Welcome to Season 2 of the Being Rare Podcast! 02/05/2022
Ep 44. Child Abuse & Neglect Prevention 27/04/2022
Ep 43. One Minute Mondays - Pressure 11/04/2022
Ep 42. One Minute Mondays - Celebrations 28/03/2022
Ep 41. Understanding Financial Advocacy 24/03/2022
Ep 40. Trisomy Awareness Month with WACE AM 730 Inspirational Radio 11/03/2022
Ep 39. One Minute Monday - Emotions 08/03/2022
Ep 38. One Minute Mondays - Community 28/02/2022
Ep 37. Rare Disease Day with Sarah Tompkins, Ms. Wheelchair Washington USA 2022 28/02/2022
Ep 36. Understanding Parent Leadership: What Is Parent Leadership and Why Is It Important? 26/02/2022
Ep 35. One Minute Monday - Being Fulfilled 21/02/2022
Ep 34. One Minute Monday - Feeling Rushed 14/02/2022
Ep 33. One Minute Mondays - Compromise 08/02/2022
Ep 32. One Minute Mondays - Balance 01/02/2022
Ep 31. One Minute Mondays - Unexpected 04/01/2022
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