Open MIC on Alzheimers Speaks - Let Your voice Be Heard!

26/12/2023 1h 16min
Open MIC on Alzheimers Speaks - Let Your voice Be Heard!

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Episode Synopsis

This show was prerecorded on December 19th and had a wonderful group of people show up and share their insights and resources regarding dementia. We had the following people contribute to the show. Marilyn Raichle - with Maude's Awards but who also shared some insights on dementia care.  https://maudesawards.org/ Craig Hanke - Lives with dementia and shared insights Tracy Perkins - Author of Dementia Home Care which is available on Amazon https://www.amazon.com/dp/1941887120 Truthful Loving Kindness - Lives with dementia and shared some insights. Laurette Klier - Founder of Nana's Book Series - https://nanasbookseries.com/ Deborah Snyder - Cares for her husband with dementia and shared 3 tips when caring. Michael Ellenbogen - Lives with dementia shared a research study on the meaning of voluntary assisted dying to Australians living with dementia.  The study is being conducted by Adrienne Matthys from the School of Social Work and Arts at Charles Sturt University. Here is a link to that survey for those living in Australia  https://www.research.net/r/VAD_CSU  Here is also a link to an article about the Australian study. https://news.csu.edu.au/latest-news/voluntary-assisted-dying-study-seeks-to-hear-from-those-living-with-dementia Dr Stan Terman founder and his assistant Barbara of Caring Advocated which specializes in Strategic Advanced Care Planning.  https://caringadvocates.org/ We also discussed the importance of brain autopsies for research and below are some resources: Boston University Brain Bank - https://www.bu.edu/cte/brain-donation-registry/ Family members of deceased athletes may donate their loved one’s brain and spinal cord after their death to the UNITE Brain Bank to be examined neuropathologically for evidence of CTE or other disorders of the central nervous system. FREE National Institute on Aging   https://neurobiobank.nih.gov/ https://neurobiobank.nih.gov/static/NIMH%20Donate_accessible_REVISED.c734bf270044.pdf The Brain Donor Project  https://braindonorproject.org/contact-us/P.O. Box 111002Naples, FL 34108-1929 513-393-7878 Watch the Youtube Video   https://youtu.be/WTK1jbt_-dY Apple Podcast Spotify Podcast   Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network.   Contact Information 4 Alzheimer’s Speaks & Dementia Map Website –  https://www.alzheimersspeaks.com/ Website –  https://www.dementiamap.com/ Radio Show - https://www.blogtalkradio.com/alzheimersspeaks   Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com   Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.Support this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.