The Rare Life

Por: Madeline Cheney
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney.

Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting.

Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.
280 episodios disponibles

Latest episodes of the podcast The Rare Life

Mostrando página 9 de 14

100: Raising Awareness | Disabled People (and Their Parents) Do Not Owe Society Anything 22/09/2022
99: Family Planning When You Have a Medically-Complex Child w/ Amanda Griffith-Atkins LMFT + 13 Special Guests 15/09/2022
98: Siblings | Ways We Can Protect Our Glass Children w/ Melissa Schlemmer 08/09/2022
97: Melissa Schlemmer’s Story | A Rare Disorder Affecting the Brain + Radical Acceptance 01/09/2022
96: “All We Want Is a Healthy Baby” | How This Feels to Parents of Unhealthy Babies 25/08/2022
95: The Parable of the Pain Scale | How Bearing Witness to Our Children’s Suffering Calibrates Our Pain Scales to an Entirely Different Level w/ Libby Holley 18/08/2022
94: Family + Friends | How to Stay Close When You Feel Worlds Apart w/ Chelsea Denham 11/08/2022
93: Chelsea’s Story | Airway Issues, a Dirty Baby, and Making Scary Medical Decisions 04/08/2022
92: Season 6 Kickoff 28/07/2022
Jess’ Story | A Twinless Twin and Something to Prove (Rebroadcast) 21/07/2022
The NICU Experience | An Initiation into Medically-Complex Parenting (rebroadcast) 14/07/2022
Effie’s Story | Siblings, Italy, and a Next-Level Laugh (rebroadcast) 07/07/2022
What Your Child’s Doctors Want You to Know, But Don’t Tell You w/ Dr. Dominic Moore, MD (Rebroadcast) 30/06/2022
Confessions of a Medical Mama w/ Anna Brown (Rebroadcast) 23/06/2022
Medical Equipment| The Ultimate Hate/Love Relationship + How to Vacation With It All w/ Falesha Johnson (Rebroadcast) 16/06/2022
It’s All My Fault (Rebroadcast) 09/06/2022
It’s OK to be Angry w/ Orley Bills, LCSW (Rebroadcast) 02/06/2022
When Your Mommy-Gut Is Alarming and The Doctors Won’t Listen w/ Tameka Diaz (Rebroadcast) 26/05/2022
91: Season 5 Finale w/ Special Guest Brittany Steitz 19/05/2022
90: Living with Sleep Deprivation w/ Jill Arneson 12/05/2022
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