The Rare Life

Por: Madeline Cheney
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney.

Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting.

Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.
280 episodios disponibles

Latest episodes of the podcast The Rare Life

Mostrando página 8 de 14

120: Alexis’ Story | Epilepsy, Holland, + Suicidal Ideation 30/03/2023
119: Your Child’s Medical Team | How to Push Back, Ask Questions, and Build Your Dream Team w/ Dr. Kelly Fradin, MD 23/03/2023
118: Medical Organization Hacks | Supplies + Info + Appointment Scheduling 16/03/2023
117: Trauma-versaries + Other Triggers to Our Medical Trauma w/ Hailey Adkisson and Madhura Katre 09/03/2023
116: Kinda Obsessed | Celebrating Our Relationships with Our Children With Rare Conditions w/ 24 Parent-Contributors 28/02/2023
115: Melanie Dimmitt’s Story | a Diagnosis Delivered in Bite Sizes + How It Started Vs. How It’s Going 23/02/2023
114: Grieving Our Children’s Intellectual Disabilities + Facing Our Internalized Ableism w/ Marci Dunning 16/02/2023
113: Blenderized Diets for Tubies | The Life-changing Health Benefits and How to Get Started w/ Cassie Krings and Hilarie Dreyer, RD 09/02/2023
112: Abby’s Story | Skeletal Dysplasia, a Prenatal Diagnosis with Grim Hopes of Survival, + Ditching the Bubble Wrap 02/02/2023
111: Season 7 Kickoff 26/01/2023
110: When Your Child is Inpatient at the Hospital During Holidays w/ Amanda Griffith-Atkins 15/12/2022
109: Isolating at Home During Holiday Events to Avoid Illness w/ Amanda Griffith-Atkins 08/12/2022
108: The Holidays + The Ways They Can be Tough for Disability Parents w/ Amanda Griffith-Atkins 17/11/2022
107: Season 6 Finale episode w/ Brittany 10/11/2022
106: Respecting and Honoring Our Nonspeaking Children w/ Brianna Christian 03/11/2022
105: Brianna’s Story | Regression, Finding Purpose, and a Nurse-Turned-Medical-Mom 27/10/2022
104: Tangible Ways to Support Parents of Disabled Children | A Message for Our Loved Ones 20/10/2022
103: Instilling Body Image Resilience in Children with Disabilities w/ Dr. Lexie Kite 13/10/2022
102: Becoming a Single Medical Mom w/ Tiffany Pasillas 06/10/2022
101: Tiffany’s Story | T18/Edward Syndrome + Advocating for Her Daughter’s Right to Live 29/09/2022
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