The Macie’s Mission Podcast

The Macie’s Mission Podcast

Por: Macie’s Mission
Listen along as we share our journey with Pompe disease and how Macie's Mission came to be. Our message is simple— spread awareness and remind families navigating life with rare diseases that they are not alone.
3 episodios disponibles

Latest episodes of the podcast The Macie’s Mission Podcast

Launching our First Pompe Fundraiser 09/12/2025
Dealing with a Rare Diagnosis: Our First Genetics Appointment 05/11/2025
The Diagnosis That Changed Everything 25/09/2025
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